Something different…

So I’ve now started to experience symptoms I’ve never felt before. Besides the head throbbing pain, the last two days I’ve had the worst stomach pain and nausea that it’s crazy.

Started my morning yesterday thinking it was just an upset stomach and treated it as such. Got the kids ready and went to spend the day at an indoor playground with the kids and my great friend Vera. Stomach continued to hurt and we cut the day short and I decided to head home. As the day progressed, it went from bad to worse. I got home with the kids and began getting so cold to a point I couldn’t warm up. Spent over 3 hours shivering to no end. Stuck myself in the tub once hubby was home and finally warmed up. At this point I had run a fever of 39.3C and just felt like death. Then my head started throbbing and my legs were in so much pain that it was unbearable to sleep. Took more meds and was finally able to sleep.

Today I woke up feeling nauseated still and afraid to eat anything. The thought of food or the smell of it just triggers another throbbing migraine and insane nausea. So I’ve been on green tea and one bagel all day.

I’ve suffered from migraines all my life and just when I think I have it under control I get days like these. It was crazy but I feel so blessed to have people in my life that checked in on me.

As you can see, migraines aren’t just the throbbing head pain but every other symptom that leads to the pain and in some cases we have the other symptoms without the throbbing head pain. Glad I decided to document my struggle cause I never expected to be experiencing new symptoms like these.

Thanks for reading

Helen

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Feeling normal

And it’s Monday. It’s so odd to feel like a regular human but happy that’s how I feel today. Been using the melatonin at night and so far I’m getting more restful sleep and it’s relaxing the brain enough to allow me to be normal. Hopefully it continues the same way. It’s just another vitamin added to the other ones I already take. My husband has said that I look like a walking pharmacy most days.

In the morning I take Vitamin B12, Vitamin D (had a deficiency in the vitamin. My body wasn’t absorbing it well from the sun) and also Vitamin C. The Vitamin C helps me not constantly feel sick as I find that I have a quick drop in my immune system when I’m more strict with my diet.

I’m the evening I take calcium and magnesium as indicated by my doctor and I’ve found it quite helpful in aiding with preventing migraines. If I happen to “forget” a few days I notice the difference right away. So now I also do 3mg of melatonin and so far it’s been helpful.

So there you have it friends. That’s my progress so far. Had a normal “human like” weekend and so far today I’ve been quite productive. Have to take advantage of getting as much stuff done as I can and spend as much quality time as I can with my children when I’m feeling good.

Thank you to everyone for all your support in the last few days. You’re all amazing.

Helen

Trial Treatment….

Do you believe this mom of two that suffers from severe chronic migraines will see some relief with melatonin? I already have melatonin at home so why not!?

Check out the link for info. Found it interesting to read and worth trying.

https://universityhealthnews.com/daily/pain/surprising-melatonin-benefits-for-migraine-sufferers/

Anyone else has tried it? If so, did you see any relief? Please share your experiences with me.

Helen

My Daily Struggle with a Chronic Illness! It’s an Okay day today…

I’m overwhelmed with the amount of feedback I received from friends. Thank you for understanding me and for offering a hand… means a lot more than you all will ever know.

Today, Friday, is an okay day. I’m up and functioning so can’t complain. I try to accomplish my to do list in bursts of energy. They usually last about 20-30 minutes so I try my hardest to get what I need to get done accomplished. I’m trying to enjoy my last few days at home with both children before they go off to school. As I sit here writing about my day it dawns on me how much of my summer I missed. This weather of course didn’t help but what it did help with was trigger nasty migraines throughout these last months. I had a few great days in the company of AMAZING little children and it’s them that get me up in the morning and make me have the energy to move. Do I wish I had done more? Of course but I also know that the time I did spend with them was precious and wouldn’t trade it for anything.

The plan is to maybe focus more on myself while the kids are in school but I know myself and I know that I won’t be able to just not do something. But it will allow me the time to focus more on things I enjoy such as cooking, baking and Crochet. Imagine that I at the age of 32 taught myself to Crochet. It’s become a very rewarding hobby. On my good days it serves as my therapy. I tend to just focus on what I’m making and it relaxes my brain. It’s just unfortunate that I’m unable to Crochet when I’m in the midst of one of my attacks. But it’s something I look forward to when I’m feeling normal.

There’s a quote I used the other day that says “I see myself as a migraine that gets to be human sometimes”. It’s pretty much true. But do understand that I’m not my illness. My illness doesn’t define who I am. It does knock me on my ass many times but I’m not my illness. I truly just wish there was more research done to help people like me. I’ve learnt that migraines are in the top 20 most debilitating illness according to WHO (World Health Organization). I didn’t realize how bad it is cause I speak from experience that 80% of the time I fake being well as to not burden loved ones or to get through a work day. Being part of online support groups it helps me feel absolutely blessed that my husband is so understanding and supportive that on many occasions he has made it clear to me that having me home makes him extremely happy. He’s seen me struggle for years with going to work and fake being well cause it was easier than trying to explain my pain and illness to others. The common thought everyone has “take some Tylenol so you feel better”. If only that was the case.

I’ve been put on preventative medication for months only to come to the conclusion that I was taking prescription medication for nothing. It wasn’t preventing. Two years ago I finally got to see a neurologist to be told “I assure you there’s nothing wrong with your head” upon asking him to send me for an MRI cause my biggest fear is having a tumour. Needless to say I stopped seeing that neurologist as he told me that he wouldn’t send me for tests and instead put me on medication that is designed for blood pressure but also treats migraines. He told me that there aren’t any meds designed specifically for migraines. Should I have requested a new neurologist? Yes! Did I? Nope. Let me explain why. After suffering for almost 30 years and to have learnt that there’s no cure or any actual effective treatment I felt that it was useless taking up a patient spot from someone that perhaps really needed a neurologist. I began focusing more on natural remedies.

I’ve looked into a daith piercing. I’ve heard success stories but I’ve also learnt that it doesn’t always works. That’s the beauty of this illness. Just because it worked for one person doesn’t mean it will work for another. I have to do a little more research on it and if I do end up going that route I will keep you all updated. In case some don’t know what the daith piercing is I’ve attached a picture.

I promise you all that if I go ahead with this I will keep you all updated. I just have to do research on it and find a good reputable place that will do it properly.

Thanks again for listening!

Helen

Diary of a mom with a chronic illness…

Hey everyone, my name is Helen and I’m a mom of two beautiful children. A 7 year old boy and a soon to be 4 year old girl. Life as a mom is quite rewarding for me. I’m lucky enough to have an amazing supportive husband who decided that my dream of being a stay at home mom was very important and essential for me and our children. All my life I’ve looked after children and I’ve always dreamt of being able to be at home and be present in my children’s lives and thankfully I get to do that.

However, having been a chronic migraine sufferer since the age of 7 it isn’t always an easy ordeal. I love had some really great months of being almost migraine free and then I go through burst of years that I’m lucky to have one day a week without some sort of migraine symptom including the excruciating pain.

Sometimes I don’t even tell people I’m in the middle of a full blown migraine attack because I have so many that it ends up sounding like I’m just complaining to those that don’t “truly” understand what this kind of life is. Many people have strangers tell them how they should “treat and cure” the migraines and I do too, but the sad part I also have family and close friends that do the same. I sometimes step back and think, “they are just trying to help Helen, they don’t know any better” but then I remind myself that these people, family especially, have seen me suffer all my life and should by now know that this isn’t something I can “cure”.

I’ve joined online support groups cause it helps to chat with others that truly understand what living with a non-curable chronic illness is like. Now I’m hoping to share with all of you what my daily life of being a mom and a migraine sufferer is like.

This week was a very difficult week. Monday was one of the worst days I’ve have in a few weeks. I was in so much pain and having the added nausea, dizziness and lack of sleep just made it even worse. I found myself trying to stay conscious all day because I was alone with my kids. Having to cancel plans with an extreme close friend was very hard for me, but because she also suffers from this horrible illness there was no need to even explain. All was needed to be said was “today is a bad day for my head”. I was met with the greatest understanding and what makes her even more special is the constant checking in on me to make sure I was okay. And then there was Hubby who was working far from home and he needs to work in order for us to maintain a roof over our heads and food in the table. I could feel his worry with every phone call to check up on me throughout the day and being unable to help but I made it through the day. I’m blessed that he truly understands what my life is like. That alone is a huge help. And it’s so hard to see that my children at this young age are already learning what having a chronic illness is like.

I’ve had the question asked many times. “How can you make it through the day? I can’t function with a headache, how do you function with a migraine?” My answer is always, “If I don’t get up and get through the day and do the best I can for my children, then who will?” No one will of course.

This is Day 6 of this migraine episode this week. Luckily not everyday was a painful day but I find the ones without pain are just as bad. Saturday, Sunday and Monday was pain and dizziness and nausea. Tuesday and Wednesday was fatigue and lack of apetite. And today, Thursday was back to pain and nausea and fatigue. Hoping tomorrow won’t be another recovery day or the beginning of another attack.

Here’s to a better tomorrow and hopefully a good weekend so I can be a fully involved mom for my children’s final soccer tournaments.

Thanks guys!

Helen